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Our Mission

The ATAD3A Patient Advocacy Alliance is committed to improving the lives of individuals affected by ATAD3A gene-related disorders, including Harel-Yoon syndrome. We support groundbreaking scientific research, provide information and a support network for patients and families, and advocate for improved medical care. Through global collaboration with researchers, clinicians, and industry leaders, we strive to accelerate discoveries, enhance treatment options, and drive meaningful change for those affected.

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This organization is organized exclusively for charitable, educational and scientific purposes under section 501(c)(3) of the Internal Revenue Code, or corresponding section of any future federal tax code.

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This organization is organized exclusively for charitable, educational and scientific purposes under section 501(c)(3) of the Internal Revenue Code, or corresponding section of any future federal tax code. Our Employee Identification Number (EIN) is 39-2212699.

 

Our website and related activities are led by volunteers to support other people with ATAD3A mutations/Harel-Yoon Syndrome and their caregivers. The information we provide is for general informational and educational purposes and is not a substitute for professional medical advice. We are not formally affiliated with any medical or research body, and all our information is based on our own understanding of the research and our own experiences.

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