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Patient Registry

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with MitoSHARE

Please participate in the MitoSHARE registry to provide consistent data to researchers who are working to better understand ATAD3A mutations and how to treat them.

This organization is organized exclusively for charitable, educational and scientific purposes under section 501(c)(3) of the Internal Revenue Code, or corresponding section of any future federal tax code. Our Employee Identification Number (EIN) is 39-2212699.

Our website and related activities are led by volunteers to support other people with ATAD3A mutations/Harel-Yoon Syndrome and their caregivers. The information we provide is for general informational and educational purposes and is not a substitute for professional medical advice. We are not formally affiliated with any medical or research body, and all our information is based on our own understanding of the research and our own experiences.