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Patient and Family Resources

Common symptoms of ATAD3A mutations/Harel Yoon Syndrome

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Types of specialists to consult

 

Treatments

 

Connect with other families

Invitation/instructions to join Facebook support group; include any other support opportunities here (Zoom calls, pairing with another family, webinars, etc.)

 

Get involved

 

Join the registry/biorepository

Sign up for emails

Volunteer with the ATAD3A Alliance board

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This organization is organized exclusively for charitable, educational and scientific purposes under section 501(c)(3) of the Internal Revenue Code, or corresponding section of any future federal tax code. Our Employee Identification Number (EIN) is 39-2212699.

 

Our website and related activities are led by volunteers to support other people with ATAD3A mutations/Harel-Yoon Syndrome and their caregivers. The information we provide is for general informational and educational purposes and is not a substitute for professional medical advice. We are not formally affiliated with any medical or research body, and all our information is based on our own understanding of the research and our own experiences.

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